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What is inflammatory bowel disease?

Inflammatory bowel disease (IBD) is an umbrella term referring to certain chronic diseases that cause inflammation of the intestines. Crohn’s disease and ulcerative colitis are the two terms most often assigned to the different types of IBD. Although they are different diseases with a variety of forms, each disease causes the destruction of the digestive system, producing a similar group of life-altering symptoms.

 

First off here are the safe and non safe food lists for the 3 diets I have focused on here! This is the number one question we see when people are working to get into remission.

Low Residue/Low Fiber 
(least restrictive of the 3 and a good starting point)

Low FODMAPS
(more restrictive with a focus on removing certain dietary sugars)

SCD or Specific Carb Diet
(focus is on cutting out complex carbs)

 

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Every IBD patient will have experienced these 10 hospital moments | Metro News

Even in long periods of remission, we can’t escape them.10 comments people with Crohn’s Disease or Ulcerative Colitis are tired of hearing Yet, just like life with IBD, hospital trips are far from straight forward.In fact, even the simplest of appointments can quickly cause fear and panic to strike. They’re full of awkwardness, misunderstandings and moments only fellow IBD folk will understand. As a Crohn’s sufferer, I recently attended a checkup and was surprised by just how many mixed emotions I had during the process.I thought I’d share them with you today and talk about the hospital moments we all experience.

1. The waiting room stare off You’ve arrived and miraculously found a place to park.Sat in the waiting room, you can’t help but wonder who else has IBD. A side effect of IBD is that when you find someone else with it, you instantly want to be their best friend and talk about it. Despite everyone being in the room for the same reason (to talk about poo), you all sit there quietly and avoid eye contact instead.

2. The false alarm after two minutes, your name is called and you praise the NHS for drastically cutting waiting times except no, it’s a false alarm. It’s just the nurse wanting to weigh you.

3. The weigh-in a normal hospital procedure but for those of us with IBD, being weighed is crucial.Lost weight? A sign our disease may be flaring. Gained weight? Damn those steroids. A stressful time all round.

4. When you need the toilet but you don’t want to miss your name you know they’re not going to call you, but what if they do and you missed it?So you spend the whole time toying with the issue and telling yourself ‘I could have gone!’Can everyone tell I need to go?

5. The nail-biting pause after you’ve finally been called in, there’s that nail-biting pause when the doctor logs on to view your result and groans loudly. Your heart starts pounding as you imagine the doctor is bracing himself to deliver bad news; only for them to moan ‘this system is slow!’ as you slowly wipe the sweat from your brow.

6.The needle, the nurse kindly asks, ‘have you had a blood test before?’ and you fight back the urge to respond that you’ve had approximately 257.

7. When they say: ‘this might hurt.’Once you’ve had a camera inserted into your backside, a needle is the least of your worries.Just a pinch

8. When you want to ask an awkward question but don’t know how to nobody likes talking to their doctor but when it’s time to talk about poo, it’s off the scale.We all have a secret ‘is this normal?’ question we want to ask, but you wait until the last minute to blurt it out: just as the doctor is opening the door and saying goodbye.

9. When a doctor asks ‘how are you doing?’You’re never sure if he’s just making small talk or he literally want to know how you’re doing, because that may take a while.

10. Spelling woes you try to write it down but fail miserably.‘IBD Medications’ should be a special spelling round on Child Genius.

Source: Every IBD patient will have experienced these 10 hospital moments | Metro News

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No Evidence Found of Plaque Psoriasis Medications Triggering IBD

A recent study squashed increasing concerns that plaque psoriasis medications trigger inflammatory bowel disease (IBD).   IBD and plaque psoriasis have significant genetic overlap, and prior studies show IBD occurs more frequently in patients with psoriasis. The underlying pathogenesis of this co-occurrence remains unknown, however.   In a study published in the American Journal of Dermatology, investigators sought to report adjudicated IBD cases in patients exposed to ixekizumab (Taltz). Ixekizumab is an antibody approved to treat plaque psoriasis. It is designed to target a cytokine believed to play a role in the development of IBD.

To determine if there was a correlation between the 2 disease states, investigators analyzed adverse events (AEs) integrated from 7 randomized controlled and uncontrolled clinical trials. The data were analyzed for the controlled induction period, controlled maintenance period, and all patients treated with ixekizumab.

Cases suspected of IBD were reviewed by blinded external experts who used internationally recognized criteria.

Investigators included data from a total of 4029 patients with moderate-to-severe plaque psoriasis exposed to any dose of ixekizumab in the 7 ongoing and complete trials. According to the study, follow-up was up to 256 weeks, comprising 6480 patient-exposure years.

The results of the study from the overall safety population showed 29 patients reported suspected Crohn’s disease or ulcerative colitis. Nineteen were adjudicated as definite or probable.

The rates of new IBD cases were uncommon, only occurring in less than 1% of patients with plaque psoriasis who received ixekizumab, according to the study. Furthermore, flares of preexisting disease were also found to be a rare occurrence.

Limitations to the study were the post-hoc nature of the adjudication––which may have limited the data needed for IBD confirmation––and the case report forms lacked specific questions for patient and family IBD history.

“Moving forward, ongoing and future ixekizumab trials include a comprehensive data-collection process that will provide greater detail for evaluation of potential IBD cases,” the authors concluded. “This continued vigilance and postmarketing surveillance will help improve understanding of IBD incidence rates during treatment with this IL-17A antagonist.”

Source: No Evidence Found of Plaque Psoriasis Medications Triggering IBD

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Foods for Sensitive Diets | Whole Foods Magazine

Living with an illness that limits the foods she can eat renders journalist Debbie Galant an expert on Crohn’s, the chronic inflammatory bowel disease that sends her to the hospital periodically to clear out an obstruction.

She’s like any of your customers seeking to spread these emergency visits as far apart as possible while enjoying a high quality of life.“The main thing is I can’t eat anything hard,” Galant says. “So, no popcorn, raw carrots, raw celery or nuts. I’m really not supposed to eat cooked corn either — but sometimes I do.

I find if I eat too much, I can get a bowel obstruction. My bowel resection surgery was a little more than 30 years ago, and the scar tissue from that is like a pipe that’s corroded. It’s basic plumbing.“I wish I could eat nuts,” she adds. “Instead, I scoop a spoon of various nut butters: peanut, cashew, almond or sunbutter.

”Each Person Is DifferentCrohn’s is considered an Inflammatory Bowel Disease (IBD) and what triggers a flare up varies from person to person. With Crohn’s, inflammation can develop anywhere in the GI tract — from the mouth to the anus — although it most commonly occurs at the end of the small intestine.According to the Crohn’s & Colitis Foundation of America (CCFA), about 67% of people with Crohn’s in remission will suffer at least one recurrence within five years (1).Another IBD is ulcerative colitis (UC), which is limited to the large intestine — the rectum and colon. Some of the main foods doctors advise people with UC to stay away from are caffeine, alcohol, dairy, carbonated beverages, and foods high in fiber. Some people with IBD can eat onions, while others cannot.

About 30% of people in remission will experience a relapse in the next year, CCFA estimates (1).Neither Crohn’s nor UC is curable, but eating the right foods and avoiding others can help stem repeat hospital visits.Meanwhile, Irritable Bowel Syndrome, which goes by the name IBS, is something that can be managed with diet. Having IBS symptoms once doesn’t mean they will happen again. IBS can be caused by stress, foods or hormones. The role of food in certain allergies or intolerances is not yet fully understood, but among the foods implicated for IBS are chocolate, spices, fats, fruits, beans, cabbage, cauliflower, broccoli, milk, carbonated beverages and alcohol (2).

Celiac disease is an autoimmune disorder where ingestion of gluten damages the small intestine. According to the Celiac Disease Foundation, “When people with celiac disease eat gluten (a protein found in wheat, rye and barley), their body mounts an immune response that attacks the small intestine. These attacks lead to damage on the villi, small fingerlike projections that line the small intestine, that promote nutrient absorption. When the villi get damaged, nutrients cannot be absorbed properly into the body” (3).Celiac disease is hereditary, meaning that it runs in families. People with a first-degree relative with celiac disease (parent, child, sibling) have a 1 in 10 risk of developing celiac disease (3). People living gluten-free must avoid foods with wheat, rye and barley, such as bread and beer. Ingesting the tiniest amounts of gluten, like crumbs from a cutting board or toaster, can trigger the immune response.

Journaling
People affected with an IBD will typically sort out what bothers them by using a food and symptom journal when first diagnosed. A food that didn’t affect them before may start to bother them down the road.Food sensitivities can develop at any age, and some can be reversed if the right steps are taken, says WholeFoods columnist and nutrition expert Jaqui Karr, CGP, CSN, CVD. While the words “sensitivity” and “allergy” are often used interchangeably, that’s a mistake. Sensitivity usually relates to the digestive system while allergy relates to the immune system.“The body is designed for variety,” Karr says. “Don’t eat the same food every day. That’s one way allergies develop.”“People with food sensitivities usually try to avoid foods that cause discomfort but may ‘cheat’ once in a while knowing they may experience some issues,” says Dave Rosenberg, food category manager, NOW Foods, Bloomingdale, IL. “On the other hand, people with a food disease or food intolerance such as a celiac, who have an autoimmune reaction when gluten is consumed, need to avoid specific foods or the repercussions can be more serious. Depending on the severity of their intolerance, they may experience dramatic allergic reactions, abdominal pain, nausea, diarrhea, constipation or even life-threatening reactions.”“A food allergy triggers an immune response, meaning your immune system mistakes the food for something harmful and attacks it,” says Anne Laraway, senior VP of business development and innovation at Happy Family, New York. “It usually happens every time you eat the food, comes on suddenly and can be life threatening.”“There are no absolutes for universally safe foods for sensitive digestive systems because once the system

Source: Foods for Sensitive Diets | Whole Foods Magazine

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NIH features early progress in understanding microbiome’s role in IBD

On Wednesday, Curtis Huttenhower, PhD, of the T.H. Chan Harvard School of Public Health and Broad Institute, shared some preliminary results from the Inflammatory Bowel Disease Multi’omics Database (IBDMDB), part of the Human Microbiome Project aiming to provide an integrated resource for characterizing the gut microbiota as it relates to IBD diagnosis and therapies. IBD “is of course … both a critical health condition in and of itself, and has become a really interesting model for the complex involvement.

IBD “is of course … both a critical health condition in and of itself, and has become a really interesting model for the complex involvement of the gut microbiome specifically in chronic disease,” Huttenhower said during his presentation. “Over about the past 5 to 10 years now, some better studies of the microbiome have helped to very quickly refine our understanding of this involvement from a high-level observation of ecological disruptions, reductions in diversity in the gut community during IBD, down to a much better understanding of specific taxa and their common metabolic and other molecular functions that are disrupted in subsets of IBD.”

IBDMDB researchers followed more than 100 individuals for 1 year, including patients with Crohn’s disease or ulcerative colitis and controls, and analyzed more than 4,000 stool, biopsy and blood samples to develop molecular profiles of host and microbial activity during IBD.

Highlighting some pilot studies within this project, Huttenhower said IBDMDB investigators identified microbially-processed small molecules implicated in IBD inflammation and severity by integrating microbial profiles with metabolomics. Additionally, they were able to pinpoint uniquely expressed microbes and pathways in a subset of patients with active disease.

IBDMDB “data represent a substantial community resource for future multi’omics studies in IBD, and have also served to provide the first integrated molecular profile of immune activity and clinical response during disease progression,” he and colleagues wrote.

Long-term goals of this research include better understanding the mechanisms driving dysbiosis in IBD, “what’s causal vs. responsive in the microbiome during IBD, changes in disease activity, and … helping to translate some of the emerging ecological understanding of the microbiome’s involvement into activities that would help in the clinic,” Huttenhower said. “This might involve for example, understanding the heterogeneity of the disease, … helping to predict response to treatment over time, predicting either the onset or remission of flares and disease activity, … and then identifying either on the host or microbial side, pathways, molecular targets that might be either causal or points of intervention for new treatments.”

Click the link below for the next 2 pages…

Source: NIH features early progress in understanding microbiome’s role in IBD

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Deadpool co-creator Fabian Nicieza talks about new comic, involving heroes with IBD.

He’s penned thousands of comics, bringing some of the biggest characters to life again and again, but you may know him best for co-creating Deadpool.

We caught up with Fabian to talk about his latest project, Deadpool the movie, Cable’s casting and his next big news….Fabian Nicieza has worked on many of the biggest and baddest comic characters, from Cable and Deadpool to Spider-man and Superman, X-Men and X-Force, so he really knows his stuff.His latest project, however, was more of a challenge than normal for the veteran writer – a story about IBD.

That’s inflammatory bowel disease.A lot of work Fabian does these days falls under Marvel Custom Solutions, special projects where they bring in the big guns.”I’ll get a call when [they] have a particularly challenging project that [they] think will interest me, because I like a particular challenge at this point in my career,” Fabian says.”When [they] said IBD, then I was like, that’s the real challenge. I need to learn more. I’m aware of it, but I need to know more about it. The challenge is to incorporate the challenges into a story.”The Unbeatables follows five superheroes.

For Fabian it’s important that people look beyond the IBD topic, for him, it’s another comic, and just as gripping as him other work. The Unbeatables has released its final two chapters after a great reception when it was launched at London Comic Con in 2016.

The graphic novel features all five of The Unbeatables , Samarium, Switchback, Luminaria, Datawave and Rubblerouser, as they take on their enemy, Technonaut.Every hero has a flaw – writing comics”It was clear to me very early on that this is nothing more than a standard Marvel hero story,” says Fabian.”The entire Marvel universe is predicated on heroes with feet of clay. Heroes that have a problem – whether that’s Tony Stark’s heart condition, Peter Parker needing to help Aunt May, but stop the bad guy, all have, for the lack of a better word, a flaw.All superheroes have their ‘flaws’ (Image: Rex)”It’s forcing them to overcome that issue in order to be the heroes they are. This is no different.  The powers can be seen as just as much of a burden as a privilege.”

People who suffer from IBD have praised the comic as it gives them a representation in the comic world, but for Fabian, we can all relate to a comic character no matter what their struggle. He explained how we all connect with something in a character and that’s what draws us in.”It reflects and mirrors aspects of yourself,” he says.

“It becomes aspiratonal.”Anyone reading any comic, at any time gravitates towards characters they can identify with. Whether IBD, or an outcast or outsider that becomes drawn to X-Men, or whether it’s the desire to be a rich playboy millionaire that creates the armour, it’s inspirational to be that cool.”

Source: Deadpool co-creator Fabian Nicieza talks about new comic, Josh Brolin Cable casting and…a Barbie crossover? – Mirror Online

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Diekman Creates Gut It Out Foundation | US92

LOS ANGELES – Texas Rangers pitcher Jake Diekman and his fiancée Amanda Soltero have created a nonprofit organization to help people living with various forms of inflammatory bowel disease (IBD).

The Wymore native has not pitched this season as he receives treatment for ulcerative colitis, one of the most common types of IBD, which he’s had since he was 10 years old. He named his organization the Gut It Out Foundation because that’s been his mantra as he recovers from surgery.Diekman said in a release, “I opened up about living with ulcerative colitis over two years ago and I never imagined the impact that it would have on my life. I’ve learned how powerful it is to bring people together, online and in person, to talk about the good and the bad of IBD.

I will continue to do that through the Foundation and I know it can be a catalyst for solutions or improvements to the community.”The foundation will be managed by Diekman’s agency, Beverly Hills Sports Council, and will be dedicated to improving the quality of life for people living with IBD. It’s currently accepting donations online at gutitoutfoundation.org to benefit research at the Mayo Clinic in Minneapolis with a goal of reaching $10,000 by Oct. 1.Diekman has undergone a series of three surgeries this year at the Mayo Clinic to remove a significant portion of his large intestine. The 2005 graduate of Southern High School returned to Wymore in February and was recognized between the boys and girls basketball games after he provided shoes for all the players on Southern’s teams. The school presented him with a check for $1,000 to the Crohn’s and Colitis Foundation of America.

Diekman has not pitched this season after his final surgery was done in June. He’s expected to begin a minor league rehab assignment in the coming weeks and hopes to return to the majors before the end of the season.

Source: Diekman Creates Gut It Out Foundation | US92

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Most Ulcerative Colitis Patients Do Not Achieve Target Remission –Doctors Lounge

FRIDAY, Aug. 18, 2017 (HealthDay News) — Most patients with ulcerative colitis (UC) do not achieve the ‘Treat to Target’ (T2T) end point of composite clinical and endoscopic remission, according to research published online Aug. 14 in the Journal of Gastroenterology and Hepatology. Noting that the T2T approach has been proposed for UC, Robert V. Bryant, M.B.B.S., from the University of Adelaide in Australia, and colleagues examined the extent to which proposed targets are achieved in real-world care in a

Source: Most Ulcerative Colitis Patients Do Not Achieve Target Remission –Doctors Lounge

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USA Uceris Financial Assistance

uceris

Most Eligible Patients with Commercial Insurance Pay Only $25 for Each UCERIS Prescription.

There are two ways to save!

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USA Entyvio Financial Assistance

Entyvio Connect Patient Assistance Program

Entyvio Connect services

Insurance verification support

Case managers work directly with insurers to help verify patient coverage and out-of-pocket (OOP) costs for Entyvio.

Prior authorization (PA) and appeals support

Case managers can identify plan-specific PA requirements to help your office obtain authorization before treatment.

Billing and coding support

Case managers respond with timely answers to billing and coding questions, helping to facilitate claims submission.

Patient financial assistance

Case managers help provide financial assistance options for eligible patients and help enroll patients into appropriate programs.

Entyvio Connect enrollment and co-pay support form

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USA Humira Financial Assistance

humira

Abbvie Patient Assistance Program

Complete the application.

  • Fill out the sections completely – please refer to the checklist on the application.
  • Attach proof of income if required.
  • Be sure that you and your doctor sign and date the application.
  • If you have Medicare Part D and are applying for assistance, download and complete the appropriate attestation form below. Call us to discuss other needed documentation.

Humira attestation form

Humira financial assistance application form

Submit the completed application by mail or fax.

Send to the fax number or address on your application.

What happens next?

We will contact you and your doctor about your application within a week to let you know if you are approved for assistance. If the application was missing information we will ask you or your doctor to provide missing information. Once received we will evaluate your application.

If approved for assistance we will ship your medication. If you are approved for assistance with HUMIRA we will contact you to schedule delivery at a time that you can be home to receive it. We evaluate all applications on a case by case basis and consider people with insurance, including Medicare Part D, on an exception basis.

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